A lot of people have been wondering how we're doing. Was it the desperate depressing last posts that had you concerned? Don't worry, we're fine.
We've been back home about five days now and Henry is having a little transition trouble. Who knows if it's leaving the routine and the hotel room we called home, or not being with me during the day anymore, or detoxing from daily intensive therapy.
But we're doing baths every night, and thanks to the amazing sister (see above photo entitled "Snuggle") who's happy to join in, Henry's sitting in the tub, splashing around, and begging to stay in and play.
This is huge.
In other news, we've ordered a special toddler vitamin rich weight gainer and two Dr. Scholls meets IKEA chairs for the kids. We went to a somewhat overwhelming geneticist appointment yesterday at the renowned UC Davis MIND Institute which happens to be here in town. It was just a consult, but opened up the unattractive possibility of Henry having an MRI. More on that in the future, I'm sure.
Other than that, things are pretty much the same. But also totally different. I know the last few weeks have changed us all for the better. But we're still just a few more steps ahead of where we were.
And things aren't really fine. But we're fine.
I just stumbled onto your blog today and wanted to say hi!
ReplyDeleteYour son is adorable -- and I can relate to eating struggles. My son would gag/choke/cough at virtually everything he ate when he was 3, complaining that it was 'going down the wrong pipe!"
Hang in there, this journey is a long bumpy one, but you'll have tons of victories too!
Hartley
www.hartleysboys.com