Wednesday, April 7, 2010
I don't want to write this
I don't want to write this. I'm really mad. And I don't want to sound negative. But I'm pissed off. And I'll warn you that there is no hopeful wrap-up at the end of this post.
We met with an amazing feeding specialist at STAR yesterday who is world renowned for her work with kids and their eating issues. She and a team comprised of a pediatrician, an occupational therapist, and a speech therapist watched Henry and me share a meal of soy yogurt, crackers and soy cheese behind a one-way mirror. After that, she came in to watch him up close and then they weighed his tiny little body and wrote up their report.
I'm mad that the news about how my boy eats, is not good news.
The team is incredible and the way Dr. Toomey explained his difficulties to us was just short of messianic. She spent three hours telling me exactly what is going on in his little mouth and why he stuffs it full of food, melts down at meal times, and chokes.
But I'm mad that his tongue doesn't work right. That he can't chew. That he has the feeding skills of a 6-9 month old. That he's anemic. That he seems to be allergic to a bunch of things. And it makes me cry. And it's frustrating. And I hate it.
And I don't want to know that his road is even harder than I knew. And I didn't want to write this. But it's all part of it.
Posted by The Closet Idealist at 6:35 PM