Wednesday, March 17, 2010

It is what it is

My sweet, charming, and frankly gorgeous son is named Henry. He's two. At 6 weeks I thought he was blind. He isn't. At 14 months, I thought he was deaf. He isn't. At 18 months, I thought he was autistic. He isn't.

He is, in the words of his sage older sister at age 5, "in particular".

It often seems like nothing quite "in particular" can be identified as the cause of his quirks, his meltdowns, or his health mysteries. It appears to be related to sensory integration, sensory processing disorder (SPD), and what people tend to call "sensory issues."

What his big sister meant, is that Henry is particularly himself. His struggles are confusing and difficult, but they aren't the whole story. We cry tears of admiration and pride in equal amounts to tears of frustration and worry.

We're headed to the STAR Center in Denver in a few days to work with a team of doctors and researchers treating and learning more about SPD kids. This is our journey. Join us.

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