tag:blogger.com,1999:blog-83353900938932020822024-02-18T22:44:36.154-08:00In ParticularSensory Processing Disorder:
A Tender AccountUnknownnoreply@blogger.comBlogger33125tag:blogger.com,1999:blog-8335390093893202082.post-67731108731399905482011-10-26T23:00:00.000-07:002011-10-26T23:08:37.599-07:00The 1%<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwxB7Snnen1uEMTMSE5_A2cgnSCBtZRfNBPrHyCcI720WwKlnhXSDj_iiC3Oq-pGWf3cRT6x2tBNJabtikNXrLEFb7rvI2IW6MDuYD0y9nqtJhzG96FU2LaJBQ7sqsGkJwwC12h-bTuI4/s1600/Htree.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="274" ida="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwxB7Snnen1uEMTMSE5_A2cgnSCBtZRfNBPrHyCcI720WwKlnhXSDj_iiC3Oq-pGWf3cRT6x2tBNJabtikNXrLEFb7rvI2IW6MDuYD0y9nqtJhzG96FU2LaJBQ7sqsGkJwwC12h-bTuI4/s320/Htree.jpg" width="320" /></a></div><br />
In the last few weeks, we’ve heard a lot about “the 1%”, referring to the wealthiest among us in America. The confident men and clever women among us who have risen to the top.<br />
<br />
I was recently reminded of another 1%. Last year, Henry scored in the 1st percentile for expressive speech. At 3, he could barely put two words together and no one but his father, sister, and I could decipher any of it.<br />
<br />
So what happens when a family with a long line of confident men and clever women meets a child who seems born from another age and another world. A world where all the tests are not assuredly passed. Where all the lines aren’t colored neatly within. A somehow softer, richer, deeper world. <br />
<br />
They are at first baffled, later intrigued, and finally, romanced. Like a respectable woman of decades past witnessing a modern art exhibit for the first time. <br />
<br />
She stands before the canvas as her upright and proper voice narrates: This doesn’t fit here. This doesn’t suit my understanding of how things work at all. It’s quite inconvenient to tell you the truth. But…it is actually almost pretty…if you look at it in a certain kind of way. She leans her head slowly as her eyes sharpen their focus. Yes, I can see it. It’s quite beautiful, really.<br />
<br />
I was beyond baffled when I first saw Henry’s canvas. I was upright and proper and angry. For the first two years, he didn’t fit here. He didn’t suit my understanding of how things work at all. It was quite inconvenient to tell you the truth. But-<br />
<br />
Henry turned four this weekend. He recently scored in the 50th percentile in speech. For us, a birthday is an opulent occasion to praise the canvas. Through meltdowns and food refusals and not being potty trained and still wanting to sleep in my bed and too loud, too bright, too much - I manage to be completely romanced.<br />
<br />
Henry romances us with a je ne sais quoi that comes from his softer, richer, deeper world. And I am confident he would not be all that he is without his history of “multiple misarticulations involving numerous phonological processes”. <br />
<br />
The artist has something extraordinary in mind, even if I don’t get it. So here’s to gazing at the messy masterpiece. Happy Birthday, buddy.<br />
<br />
<a href="http://spdfoundation.net/sensory-processing-blog/">A version of this post originally appeared on the Sensory Processing Disorder Foundation blog, October, 2011</a>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-17179484141281703142011-06-27T00:48:00.000-07:002011-06-27T01:00:34.544-07:00Preschool Poet<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_d97EP1go8P1GPQYKcFkBRgUV2C_tbwuoNekqlJChph0-RuHwn4rapQKfNAufNjQfBbQa75UP5CM1p4HToDlsOC8Rkn3ysguVbV0RU92DW9t1S6azRIJJFs9DtsjiGeCt5pv7qjK05-A/s1600/222655_1983606478637_1497480573_32184372_5139541_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="212" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_d97EP1go8P1GPQYKcFkBRgUV2C_tbwuoNekqlJChph0-RuHwn4rapQKfNAufNjQfBbQa75UP5CM1p4HToDlsOC8Rkn3ysguVbV0RU92DW9t1S6azRIJJFs9DtsjiGeCt5pv7qjK05-A/s320/222655_1983606478637_1497480573_32184372_5139541_n.jpg" width="320" /></a></div>It's been a while. One year ago my boy wouldn't touch water, couldn't chew or say more than a few words. He had never hugged a friend or even had a friend like the sweet one in this picture. <br />
<br />
18 months since starting therapy. 9 months since starting preschool. 6 months since I first heard I love you.<br />
<br />
And we find ourselves here. At that place where something broken catches refracted light and moves into lose your breath beauty.<br />
<br />
For a long while, I fixated on wanting to hear Henry say I love you. More than just worrying about his speech, I wondered if he would ever feel love. Would his neurons ever give him enough peace to notice? Could he forget for one second that his physical world was bombarding him with anxiety to focus on another person? <br />
<br />
The extravagant truth is that Henry has become a Petrarch of the preschool set. He won't stop telling us how much he loves us. He says it a hundred times a day. He tells you he'd love you on a sunny day or a rainy day. He yells it from his room across the house. He says he loves your eyes. <br />
<br />
Lately, being Henry's mom is like listening to a violinist on the streets of Venice. I know the pigeons are dirty and occasionally I think the whole city is crumbling into the sea, but can you even believe this moment?<br />
<br />
I'm guessing this kid is going to have his heart broken a thousand times in large and small ways. Here's to hoping all those pieces get gathered up to refract light into something beautiful.Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-8335390093893202082.post-14345231692202138842011-03-01T22:55:00.000-08:002011-03-01T22:55:12.044-08:00Oprah and SPDLast month, Oprah featured a segment on a violent child who was diagnosed with sensory integration disorder. I was thrilled when I heard that Oprah had mentioned sensory issues! However, the impression was given that SPD is an inherently violent and uncontrollable disorder. SPD Foundation is asking folks to write Oprah and to request a more full picture of what SPD affects children and what can be done to help. Mine is below-it's truncated due to character limit. You know me, I'd usually be much more verbose.<br />
If you're interested in writing, get instructions <a href="http://spdfoundation.net/oprah/">here</a>.<br />
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Oprah, I am a parent of a child with SPD. While Zach, profiled on your show, was diagnosed with sensory integration disorder, it’s important that people know that SPD is not an inherently violent disorder. The way my son Henry experiences the world makes textures, light, and sound painful and confusing. While that poses daily frustrations (It’s too bright! That’s too cold!), it has created a beautiful depth in him to feel music in his bones and seek affection in a soft arm or smooth hair. Henry turned 2 after a year of inconsolable crying, refusal to eat, and inability to speak. A friend suggested The Out of Sync Child, a book that changed our lives allowing me to finally understand my child. After spending 5 weeks of intensive occupational therapy at the preeminent center for SPD research (STAR Center), my son began a miraculous transformation. Before therapy, Henry couldn’t bathe because he couldn’t stand the feel of water on his skin. He couldn’t eat because he didn’t like the smell, look, or texture of food. He couldn’t be in a crowded place because he couldn’t tell where someone else’s body was compared to his own. It has not been easy, but Henry now takes baths, socializes at preschool successfully, and has an incredible amount of affection and gentleness toward his family. Oprah, I’m so thankful that you mentioned sensory integration disorder on your show. Please consider letting your viewers know more about SPD and what can be done to help. HenryinParticular@blogspot.comUnknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-49036971233594746262010-11-21T15:27:00.000-08:002010-11-21T15:32:40.560-08:00Cry E P<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-_73JcxFWMB2LB2fCTPwzblf4lK1sY2EtTWRZ7lJGeG94ODAJUAjYyq2TxNm43h_bLT7DinEdgTt36t8F1adh60fvFfx4gKjUlTKYHhtrJIZKyYNZ4I23Rs0DNkzxThYmZVi6hswQ3Q0/s1600/DSC_0035.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="212" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-_73JcxFWMB2LB2fCTPwzblf4lK1sY2EtTWRZ7lJGeG94ODAJUAjYyq2TxNm43h_bLT7DinEdgTt36t8F1adh60fvFfx4gKjUlTKYHhtrJIZKyYNZ4I23Rs0DNkzxThYmZVi6hswQ3Q0/s320/DSC_0035.JPG" width="320" /></a></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Ever heard of an IEP? I hadn’t either. But when your child turns three, if there is concern about developmental delay, the school system puts them through additional assessments and determines the types of therapy they qualify for. I gotta say, I am really thankful for an educational system that foots the bill for therapy at this stage. (Incidentally, my state is more than $20 billion in debt, but this is when I thank my dysfunctional Golden State for its concern for the least of these.)</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Anyway, from what I’ve heard, the IEP is never easy. In my experience, this is because it’s never easy to drive out to a school you’ve never been to and sit in a child’s sized plastic chair for two hours and listen to people you don’t know tell you about all the things that your baby boy doesn’t do right. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">There’s not a single mention of the way he holds your face at night after you’ve read your eight millionth rendition of Goodnight Moon. Or the way he climbs into your lap at the dinner table with the sole purpose to charm you so you’ll quit trying to get him to eat. Or the way he uses his little voice to say two of his very few words and ask, “What Mama?” when even his tiny soul can tell that the day has become too much for your tired heart. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">But the IEP is not about strengths. It is about needs. Special needs. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Before our IEP, we were feeling really good about the progress Henry’s making. Because he’s making <span style="font-family: 'Times New Roman Bold';"><b>really good</b></span> progress. But the optimistic moments of a hopeful parent do not equal the critical and necessary eye of educators. And I’m not saying they’re always right, and I’m not saying they always focus on what’s really important, and I’m not saying they really know my son. </div><div class="MsoNormal"><br />
</div><div class="MsoNormal">But they know what he needs to be ready for school. They know he can’t sit right, that he’s not coming close to holding a crayon correctly, and Lord knows he’s not talking enough.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">It’s not easy to get in the car after the IEP and let the tears well up on the way home, and it’s not easy to start dinner and try to remember everything and explain to your husband what they said and why it hurt and why they’re right. It’s not easy to feel like anything other than a failed parenting experiment when you subsequently lose the IEP paperwork for a week or two.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">But then, oh then. Then, you miraculously find the paperwork, you rearrange everything to get him to three classes a week for speech and occupational therapy, and the teachers gush about his sweet nature and praise his strong progress. He comes home with art projects and starts to say r’s. You pray for his brain, his mouth, his hands every night. That they would be strong, that they would work.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Then, one night, after the weather’s gotten cooler and the days have shortened, you put on Chopin. You look over and see him lost in the beauty. Eyes closed, head and arms moving slowly and in perfect time. They don’t put that in an IEP. But that’s what he is. And he’s yours.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">*<a href="http://spdfoundation.net/">This post originally appeared on Sensory Processing Disorder Foundation blog November, 2010</a></div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-8335390093893202082.post-43426574421097204042010-09-20T21:22:00.000-07:002010-09-20T21:22:41.926-07:00Since the First Year<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnkJhYoDBkn9lWQjnJY5LhlWET_3cgTzSDjQThh4qK3gkTt4ulSlkjEOw5aVN6h12ZMfVe6QHa80SLUMfzM-oGtGwTW5j0LnJArlIv7ZzQTWfY5vfds3m2cZMU1Xge0hT4DrpqlgY48Gc/s1600/DSC_0202.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnkJhYoDBkn9lWQjnJY5LhlWET_3cgTzSDjQThh4qK3gkTt4ulSlkjEOw5aVN6h12ZMfVe6QHa80SLUMfzM-oGtGwTW5j0LnJArlIv7ZzQTWfY5vfds3m2cZMU1Xge0hT4DrpqlgY48Gc/s320/DSC_0202.JPG" /></a></div><br />
So, Henry's dad is a real find. The day we met he was handsome and kind and smart as a whip. Moments into our first conversation, I ended up blustering something about justice and winning an argument. Not much has changed.<br />
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;"><o:p></o:p></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">The year Henry was born was a hard one. You might guess that a child that screams for the better part of 12 months would be hard on a marriage. You’d be right. It’s actually a little bit like being tortured. And when you’re tortured, you can be convinced to do horrible things to people you love. Like forget how handsome, kind, and smart they are. And you bluster something about justice and win an argument because “I don’t DESERVE this!”<o:p></o:p></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">I’ve learned a little bit since that year. First of all, discussions of justice are best left to grad school and the U.N. Secondly, the screaming can get better. Henry’s occupational therapy helped tremendously toward a more peaceful life for all of us. Lastly, I’m pretty sure that the way you treat the people in your home might just be the most important thing you do in this life.<o:p></o:p></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">No one would be surprised to hear that a toddler with SPD has tired parents who don’t have a lot of carefree weekends in Tahiti. But here’s the super special secret about being married to someone who raises a kid who has never said his own name or eaten a meal the size of which would be appropriate for a small rodent; He GETS it. <o:p></o:p></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">People who love the same things often have an instant connection and understanding. Henry’s dad knows me perfectly because we love the same difficult, beautiful, complex, and screaming little boy. So we keep trying. To know and be known. To love and be loved. Everything else is just blustering.<o:p></o:p></div><div class="MsoNormal"><br />
</div><div class="MsoNormal"></div><div class="MsoNormal" style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">[This post was originally written for <a href="http://spdfoundation.net/sensory-processing-blog/2010/09/15/since-the-first-year/">SPD Foundation blog</a>]</div><div><br />
</div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-8335390093893202082.post-81739056844437549132010-09-06T21:45:00.000-07:002010-09-06T21:45:24.708-07:00A Little Bit Perfect<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyCAR4LBKP3lu3vT7bZwi6oELuWZJbHiySLko4N1Yi99fFZ8oNgOis3waBPwYcegf48q92MUfnB1J-sVDD1DdHZ0NH29_ufkK41sToM-UcqoAETy_-eK0OWGaxq79gRMOcL3D7q96646I/s1600/DSC_0128.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyCAR4LBKP3lu3vT7bZwi6oELuWZJbHiySLko4N1Yi99fFZ8oNgOis3waBPwYcegf48q92MUfnB1J-sVDD1DdHZ0NH29_ufkK41sToM-UcqoAETy_-eK0OWGaxq79gRMOcL3D7q96646I/s320/DSC_0128.JPG" /></a></div><br />
The other day, I found myself saying something unbelievable as I explained SPD to a new friend. It went something like this, "You know, it's actually a little bit hard to identify Henry's particular symptoms these days." WHAT??!?<br />
<br />
Some folks asked me how the first day of preschool went. I'd say it was a little bit perfect. There were no tears at drop-off- Oh wait, that's not true, I was crying a river and spontaneously hugged a kind looking stranger woman who was walking past. Henry met a friend whose name he can pronounce perfectly and is excited to go back tomorrow. The teacher's only concern was that he hadn't eaten snack-Ha! Get used to it.<br />
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We are living in a parallel universe lately, where a little boy that lives in our house speaks a language that sounds a little bit like English, knows other children who he plays with, and even takes baths. See the photo above entitled Hey, I'll Try Anything To Get This Kid Clean. That night, it took wearing a winter hat for him to be happy in the tub. No problem.<br />
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I'm the type who believes in God. And I know a lot of people who asked God to help Henry out. For some reason, it's a little bit hard to believe that maybe we're over the worst of it. And maybe we're not (believe me, I'm no happy clappy everything's victorious and don't you know we're all going to be fine type of God believer, although I guess if you've ever read this blog, you know that by now).<br />
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But tonight, as I look at Henry falling asleep, I have this teary idea that he is absolutely perfect. And I'm going to go ahead and say thanks either way. Thanks for making him a little bit less afraid. A little bit less alone. Thanks for giving me this little boy. The one who says something that sounds a little bit like I love you. And I ask myself, don't you know we're all going to be fine?Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-8335390093893202082.post-25460233992824961182010-09-02T22:33:00.000-07:002010-09-02T22:34:38.539-07:00Letter to Henry on the first day of preschool<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha_8YZmA4fvcOm1JQOc6zrDhF2i9sJaC5GXDKFME-RL6pE6bCNIh8YgDATFDmsKmc4QqeTp9UQo8wTSabfkKRpD9ttonEEynuC2TrENDjwyFJ3D-AkInl3a0ZoDVNkot_ueYyJlUZ6Jgc/s1600/DSC_0017.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha_8YZmA4fvcOm1JQOc6zrDhF2i9sJaC5GXDKFME-RL6pE6bCNIh8YgDATFDmsKmc4QqeTp9UQo8wTSabfkKRpD9ttonEEynuC2TrENDjwyFJ3D-AkInl3a0ZoDVNkot_ueYyJlUZ6Jgc/s320/DSC_0017.JPG" /></a></div><br />
It's not easy to let you go into the world. I've spent a lot of time protecting you, explaining you, sadly sometimes hiding you away in a safer place. But it seems that today is the day you start a bit of your journey without me.<br />
<br />
Let me start by saying that you make this world richer and fuller. Sometimes I feel like you're my heart walking around on this planet. That every one of your bumps and bruises hits me full in the chest and every one of your struggles drags me out of bed and sends me to work in the quarry without enough sleep, head throbbing with more than enough wine. But what would I be without a bruised heart? Not full. Not human.<br />
<br />
Let me also tell you that you have an enviable heart. It moves with all you have, with equal parts love and fury. But your spirit is infectious, and people are drawn to you, and you are loved. Don't hesitate to share yourself with others. I echo what your sister advised last night. "If someone says hello, say hello back." Even if you can't say your L's yet.<br />
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Let me end by saying that you are exactly as you were meant to be. That every bit of you was designed with purpose, with intent, and with grace. That your bumps and bruises and struggles are part of your story, and that until I belong to the ages, I will undoubtedly be here after each one.<br />
<br />
We are yours.<br />
<br />
Love, mamaUnknownnoreply@blogger.com3tag:blogger.com,1999:blog-8335390093893202082.post-849572751968344682010-08-29T00:32:00.000-07:002010-08-29T00:57:50.587-07:00Dirt Boy<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhm2uo7GDtT2SbjjCWAT-7fT_GfQhxfNxy7YcdkGsxaQQewZCT_Xb9a8T0QRYW2pLm5dgF2xHq67X-ZqBRS_yjL1Bbmi9bUuaGFix9amDv_EfZhClg_tU9wrRq8tlJk2WzqVdvEzqHIte0/s1600/DSC_0158.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhm2uo7GDtT2SbjjCWAT-7fT_GfQhxfNxy7YcdkGsxaQQewZCT_Xb9a8T0QRYW2pLm5dgF2xHq67X-ZqBRS_yjL1Bbmi9bUuaGFix9amDv_EfZhClg_tU9wrRq8tlJk2WzqVdvEzqHIte0/s320/DSC_0158.JPG" /></a></div>I've never been a super outdoorsy type a girl. But recently, I've been giving it a shot. Why you ask, she who loves heels, skirts, cafes, books, etc.? Because I think it's really, really good for Henry.<br />
<br />
I just read a beautiful book about a boy with autism whose father seeks healing on the backs of horses in Mongolia. <a href="http://www.horseboymovie.com/">Horse Boy</a> is a must read for anyone who is or wants to understand what it's like to be a parent of a nontypical child. Seriously. Go read it. Really.<br />
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But it also <i>really</i> inspired me to get outside with Henry. He has always been somewhat calmed down with a soft breeze or by listening to birds, watching bugs or collecting rocks. It's odd, because indoors, the physical sensation of having dirt or water on him normally sends him into a tailspin. But not outdoorsy dirt. (see above photo for proof). I don't get it-but it works.<br />
<br />
While hiking the other day, he was confident, energetic, adventurous. He was everything he is without the fear and worry of his senses misfiring. He embraced the world out in it's true nature. The real world was his for the taking.<br />
<br />
We just recently moved to a new town, with a new house, new friends, a new job, and now, a new (and his first ever) preschool/daycare situation. I am, admittedly, freaking out about it. But maybe Dirt Boy is also Preschool Boy. I'm not going to be the one to decide for him.<br />
<br />
Stay tuned.Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-31041166334246452412010-08-22T22:40:00.000-07:002010-08-23T01:13:12.376-07:00An Open Letter to the Respectable Public<div style="color: #333333; font-family: 'Lucida Grande', Verdana, Arial, sans-serif; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizlCX23Upu-0p16kiBiMAzoXsznp-_MAk0QyMbothLbI-Q_-Rd8MfLlLSRrydjFtmrxoL_YZxgd4jM5mBQtSZaC3K2aGbwz00xCkF3eSH11cBUwq9eHz1yUBzCUY8npGVAiF_511oP2R0/s1600/DSC_0014.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizlCX23Upu-0p16kiBiMAzoXsznp-_MAk0QyMbothLbI-Q_-Rd8MfLlLSRrydjFtmrxoL_YZxgd4jM5mBQtSZaC3K2aGbwz00xCkF3eSH11cBUwq9eHz1yUBzCUY8npGVAiF_511oP2R0/s320/DSC_0014.JPG" /></a></div><br />
</div><div style="color: #333333; font-family: 'Lucida Grande', Verdana, Arial, sans-serif; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">Lately I’ve noticed a few more of your longer-than-necessary glances in our direction when I’m out with my son, Henry. I’d like to say that it’s his magnetic smile and attractive wardrobe, but I’m afraid that’s not always the reason. It seems that my son’s sensory behavior has been capturing a bit more of your attention than it used to. For instance, you look slightly puzzled when he lays down on the booth in restaurants, concerned when he clings to me with his head buried in my neck during fireworks, uncomfortable when he can’t respond to, “What’s your name?” Unfortunately, I don’t often have the time, energy, or relationship to explain to you that he doesn’t like the way his back feels when he sits, that the noise of Independence Day probably makes his head feel like it’s going to explode, and that his tongue and lips don’t often cooperate with his brain.</span></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; min-height: 14px;"></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">Perhaps it’s becoming more obvious that something in particular is going on with Henry since he’s looking older these days. No longer a mischievous and understandably crabby toddler, but a tall, almost 3 year old boy headed to…preschool?</span></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; min-height: 14px;"></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">Frankly, I myself am a woman who deep down prefers to be admired and understood, heck, ignored rather than critiqued, so this is understandably unpleasant. You see, good people of the public who perhaps wisely raise an eyebrow at me, the mother who can’t or hasn’t or doesn’t care to teach her child proper manners, I’ve got a great narrative to share if you let me explain. I could tell you about the swell of my heart to the point of stretching and breaking that happens darn near every mealtime, bath time, car ride, and bedtime. I could tell you about how many referrals, doctors, tests, and insurance journeys I’ve traveled barefoot and thirsty. I could tell you about fears and worries and missed appointments and missed milestones. I’ve got a really good story.</span></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; min-height: 14px;"></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">So while part of me wants to explain all this so you won’t judge or hide out at home so you won’t notice, instead I’ll try to focus on us. And the way his father and sister cheer and jump up and down when he eats one bite of hot dog or gets a word just right. And the way he responds to praise, parading like a peacock when he successfully completes a puzzle. And the way that the struggles have brought us all nearer in spirit to each other and to those who love us.</span></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; min-height: 14px;"></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">So, upright citizens, it actually isn’t that significant or important to me that you understand this, but my kid’s not misbehaving. He’s doing his best to figure out this world and sometimes it seems like I’m right there with him. I’ve got a really good story because it’s both an adventure and a love story. And, as I’m sure you know, all that matters for a good ending is that the main characters never give up on each other.</span></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; min-height: 14px;"></div><div style="color: #333333; font-size: 1.05em; font: normal normal normal 12px/normal Helvetica; line-height: 16px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><span class="Apple-style-span" style="font-family: Verdana, sans-serif;">Yours truly, Mom</span></div><div><br />
</div>Unknownnoreply@blogger.com7tag:blogger.com,1999:blog-8335390093893202082.post-54912207181993394832010-06-10T23:44:00.000-07:002010-08-23T00:49:22.383-07:00Turning the page<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi38q8NUEC8qv-mzbhchskChb7LciITieJB4Z1XWB1zIWI_6P0zWTpKDY7ZHts0y44BD_VmO7VeUixpMTWgj8GUIseawVnnSI9BG9bsEl91FOwkMyBjQ3aMTaFQbfpS5DXkwwjSakEA_J8/s1600/Henry+Hiking.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi38q8NUEC8qv-mzbhchskChb7LciITieJB4Z1XWB1zIWI_6P0zWTpKDY7ZHts0y44BD_VmO7VeUixpMTWgj8GUIseawVnnSI9BG9bsEl91FOwkMyBjQ3aMTaFQbfpS5DXkwwjSakEA_J8/s320/Henry+Hiking.jpg" /></a></div><br />
<br />
Sometimes I can only gauge Henry's progress on the simple things. Is he screaming? Less. Is he talking? More.<br />
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Thankfully, the bright and big-hearted therapists at STAR see the details. "He's using a lateral tongue tip suspended equipment elevated arousal verbal cue!" I made that one up.<br />
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But they do have some technical ways to describe a simple message. Henry is doing really very extremely well. In fact yesterday, he was referred to as a feeding therapy rockstar. It's hard for me to wrap my head around this. Can all the hopes and prayers pinned on ball pits and swings be changing his life? Can playing with food and chewing demonstrably be shaping who he will be? The fascinating and mindbending answer is YES. I always expected OT to work. Now that it has, I feel like crying and smiling and falling asleep.<br />
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Coming to STAR might have been the best decision we've ever made. Now that it's over, it seems like a chapter in Henry's book is coming to an end. And I don't know what's next and I don't know how it ends. But I think it's a romance. And it's not going to be easy reading. But I know I can't put it down.Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-46281461523635295592010-06-09T00:27:00.000-07:002010-06-09T00:28:21.281-07:00You kiss your Mama with that mouth?<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9JGRNdAYEeklU2n1lDhoUA8W4UiVyK14qFo4BEBY0nMdIklvR_CMrzzf5QgVxtwVrEY3kanIQCEBKwKrh0Afb8ZmSscagjVpeWdoRs_q-Vccrfu2kRgqY47HhMwI3jCOIgtawWTzkn3A/s1600/DSC_0007.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9JGRNdAYEeklU2n1lDhoUA8W4UiVyK14qFo4BEBY0nMdIklvR_CMrzzf5QgVxtwVrEY3kanIQCEBKwKrh0Afb8ZmSscagjVpeWdoRs_q-Vccrfu2kRgqY47HhMwI3jCOIgtawWTzkn3A/s320/DSC_0007.jpg" /></a></div><br />
Look at that sweet little mouth. Who would know that those tiny lips and tongue don't work quite right? Yet.<br />
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Unlike typical babies, Henry never complied with our attempts get him to repeat "ba ba ba" and he never put toys in his mouth. For almost 2 years his kisses were more like Swahili tongue clicks.<br />
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Those oral motor milestones that Henry confidently eschewed put him about a year behind in that stuff. But we've seen incredible progress in just the last week. His ability to repeat sounds has exploded and he's chewing and swallowing better than ever.<br />
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This week we've been listening to the fabulous new <a href="http://www.nytimes.com/2010/04/18/arts/music/18merchant.html">Natalie Merchant album</a>. Henry's been continually imitating violins and trumpets, drum snares and piano, scatting like he's <a href="http://www.youtube.com/watch?v=PbL9vr4Q2LU">Ella Fitzgerald</a>. He parrots a high pitched "beep" when I lock the car. He's doing animal sounds and singing, in a manner, tunes written by someone other than himself. For the first time he is hearing and processing and producing sound with thoughtfulness. Awesome.<br />
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Henry now kisses normally. And when you've got kisses and smiles and love, words seem secondary. But the words are sounding really really good.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-64313482565755955892010-06-06T00:47:00.000-07:002010-06-06T00:56:48.471-07:00Bright. Loud. Soft. Musical.<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilHqgZA_r3jsZq2IkxQC1dBb4ssOrTPPLbRScXQPfw7s0X9lpSYuPXA5sMI00ku50yQzHEBCgtqSlJU95DbKYSZU60m3pwJDd5uCVUWtf0vXmKIAl4dPyj67-aHXq9uX67-rPPW30VpzM/s1600/DSC_0014.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilHqgZA_r3jsZq2IkxQC1dBb4ssOrTPPLbRScXQPfw7s0X9lpSYuPXA5sMI00ku50yQzHEBCgtqSlJU95DbKYSZU60m3pwJDd5uCVUWtf0vXmKIAl4dPyj67-aHXq9uX67-rPPW30VpzM/s320/DSC_0014.JPG" /></a></div><br />
Not gonna lie. Preeeeety tired right now. It's 1:04 AM and little man just fell asleep. First of all, notice the peeling sticker in the pic. Okay, here's the story-<br />
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><br />
</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">Big sister gets to town today which is fantastic (she is the love of Henry's life at this stage) and we all get very excited and probably have a little too much fun. So whether it is the laughing and running around, skipping the nap, or the many, many gummy worms, Henry gets overexcited. And can not come down.</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><br />
</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">I am not kidding. The kid can scream for days. So to avoid hotel security coming to knock on my door after many, many attempts at bedtime, I decide to let him play until he finally fell asleep. Problem is, he <b>can</b> <b>not</b> regulate by himself. So it takes until after midnight as he's "swimming" on the carpet, running into walls, and hitting me with my book for me to finally get him to lay down while I hold him tight to my chest until he's heavy with sleep.</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><br />
</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">As he's laying down, he moves my dress a little so his cheek can rest on my skin. And it occurs to me; Henry feels more. He experiences the world more. And in a twisted optimistic moment, I see it as a gift. How many artists, musicians, poets, playwrights, feel the world more deeply than the rest of us?</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><br />
</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">Henry's going to be the man who can't forget the smell of his first love's hair. Who can't stop thinking of ways to describe a sunset or a symphony. And who will probably always have very high thread count sheets.</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><br />
</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">There are all sorts of books and opinions out there regarding medicating the tortured artists of our time. While I know Henry needs therapy so he can learn to overcome some of the fear surrounding his sensory over-responsivness, I hope he will retain a part of the way he feels the world. Bright. Loud. Soft. Musical.</div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-8335390093893202082.post-40181972600751076982010-06-05T12:28:00.000-07:002010-06-05T12:28:19.879-07:00Neurons and Stickers<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWOW7KFRjXu67_1fYbuWM4_DcKzwuUXRfdcnrKB2F3qovKQST-nTcoKhREMkF2d8vrc6SURxOi1Adxh0X2lORb0NNj0snvF0SVLL0869KK-6e61mTqD-BB1nLgsqofiUvd2J7T-HxFx1c/s1600/DSC_0001.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWOW7KFRjXu67_1fYbuWM4_DcKzwuUXRfdcnrKB2F3qovKQST-nTcoKhREMkF2d8vrc6SURxOi1Adxh0X2lORb0NNj0snvF0SVLL0869KK-6e61mTqD-BB1nLgsqofiUvd2J7T-HxFx1c/s320/DSC_0001.JPG" /></a></div><br />
Two hours of therapy a day may not sound like hard work. But in occupational therapy terms those two hours are filled with some serious neurological limit stretching.<br />
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For the last couple days, Henry has become very fixated on situating his napkin in a certain way during "food school." His therapist explained that when asked to do something uncomfortable, like touching applesauce, Henry will try to exert greater control over his environment. This explains why some behaviors of SPD are often mistaken for OCD. This also explains the stickers.<br />
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The last few days Henry's gotten stickers on the back of his hands after therapy. During bathtime the first night here, I realized he was not letting those stickers come off if Elmo had requested it himself. I let it go for a couple days until the vague shreds of Spiderman and that gross gray adhesive residue was all that remained. I have a teensy tinsy anxiety part of me that can't stand that kind of thing, so at a distracted moment I grabbed his hand and scrubbed it off.<br />
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Mistake.<br />
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After being presented with the Worst Mom in the World Award, I tried to soothe the incredible meltdown that followed. I bribed him with a new sticker but he covered his hand and screamed every time I came near. We're still working on getting some trust back around his hands. Not super proud of that.<br />
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I realize with his neurons having some major work done this week, Henry's controlling tendencies are on full blast. Problem: someone else in this hotel suite has controlling tendencies. So, I'm gonna give on the stickers. And that is not easy for me. But it's harder for him. And I'm the grown up.Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-81233299807490978472010-06-03T19:55:00.000-07:002010-06-03T20:44:32.573-07:00Defiant. But cute.<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFCwHFtNlLaICri5s2I3rDfZl6IC7WqGNz0sWuzofkyZePbEDZdQp3v5l9Ra_cYyZFNcOYra1tN-bPzN56wNvPdVsE8QR4gR2xxh5jf8FjK4A-CPINpM6U6oPNj1nDp6a0JrJeupebPWc/s1600/DSC_0010.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFCwHFtNlLaICri5s2I3rDfZl6IC7WqGNz0sWuzofkyZePbEDZdQp3v5l9Ra_cYyZFNcOYra1tN-bPzN56wNvPdVsE8QR4gR2xxh5jf8FjK4A-CPINpM6U6oPNj1nDp6a0JrJeupebPWc/s320/DSC_0010.JPG" /></a></div><br />
Because I waited so long to hear Henry speak, even the way he says No makes me smile. Think of a pixie cuddling a puppy on the back of a miniature horse wrapped up with a bow in an Easter basket. That's how cute it is.<br />
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But one way in which Henry is completely typical is his 2 and half year old defiance. With a sensory kid, my normal parenting strategies are less than effective. I'm not saying we have it harder than other parents, but it's certainly different. My daughter at this age would say things like, "I feel as though perhaps I don't care to go to tea today Mommy." Okay, that's exaggeration, but not by much. She did ask for a chandelier at this age.<br />
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I realize that Henry is, and has always been, in control. Believe me, I do not like that this is the case. But he could make my life miserable if he wanted to. He has the ability to scream for hours if bedtime doesn't go well. And guess which one of us (barring losing consciousness) is going to give in first. He can refuse any and all food for days if it's not presented in the right way and make a road trip worse than certain forms of tortured now ruled unconstitutional.<br />
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The main difference about parenting Henry is the time it takes to make anything work. I often feel like the funny but average looking bachelor trying to woo the prettiest girl in the room onto the dance floor. I know there's almost no chance, but if I say the right things and smile confidently, she just might buy it.<br />
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<a href="http://www.loveandlogic.com/">Love and Logic</a> is a parenting strategy that I find brilliant. It combines choices and their consequences with grace and real forgiveness. I've just started to be able to communicate well enough with Henry to see how it will work with him. I'm sure I'll need to amend my style a bit for his particularity. In the meantime, good thing he's cute.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-33840850423881351072010-06-01T22:22:00.000-07:002010-06-02T19:33:06.056-07:00SPD in summer<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgumPHYHQ2sz-84UtcEQGy0depiclozH6VS3kTQlW6OgYSebEgPzYPcNeu0iREj-qRZVajwxFb4fjYKUlu_JdL1R5zt6W4LN3E1ST_7RGJ8qKne2NxwIF25bOLX0fEjC5D9sfD7hZQOKiU/s1600/DSC_0025.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgumPHYHQ2sz-84UtcEQGy0depiclozH6VS3kTQlW6OgYSebEgPzYPcNeu0iREj-qRZVajwxFb4fjYKUlu_JdL1R5zt6W4LN3E1ST_7RGJ8qKne2NxwIF25bOLX0fEjC5D9sfD7hZQOKiU/s320/DSC_0025.JPG" /></a></div><div style="text-align: justify;"></div><br />
Summer means hot sun, pools, sand, and messy food (think about it-juicy watermelon, saucy barbeque, buttery corn on the cob, drippy ice cream). All these sensory landmines give me some anxiety about enjoying summer with a kid with SPD. But the good news is we're starting out the summer back in Denver at the <a href="http://www.starcenter.us/">STAR Center</a>.<br />
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Henry's therapists were surprised and impressed today with the progress he's made (using his core muscles to balance, having more words, and putting on 2 pounds!). Though sometimes it feels like SPD defines everything we do, when life is happening fast, it's easy to miss his improvements and growth. Now that I'm here and focused I'm realizing just how much has changed since two months ago.<br />
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The OT said today that he would not have made these strides without the efforts back home. And while I don't want to admit that it was really nice to hear, it was. I've heard more than a few times from other folks suggesting that maybe he'll just naturally grow out of it. I'll do everything I can for us to never know if that's true. Even if that's spending two more weeks watching all night HGTV on loop because I can't sleep in hotels.<br />
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The fact that no one has ever heard of SPD makes me still feel a little crazy sometimes. When the rental car guy asked me why we were in town, I paused. It's a long story, I said.<br />
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A long story that's changed me and my family forever. Not to be dramatic but I feel as though for the first time, I see the world. I see a little more of its fullness of struggle and love.<br />
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That said, I'm sure this isn't the whole story. It's just summer.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-19989363549919670332010-05-09T22:31:00.000-07:002010-05-09T22:35:03.340-07:00Simply Beautiful<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0V9N34UYzWfKsejG0ncyKMULi7X17lt4T3523bX2xtCaimsiT1XAtaJiNKQSwUVeD-LQ4rRDiRrVIJSr9SLa0buRx_h_JGCI0uIvRI3maZvy-_0pijSBMUbgvZbXiN7W1GL4geUHAKbc/s1600/DSC_0004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0V9N34UYzWfKsejG0ncyKMULi7X17lt4T3523bX2xtCaimsiT1XAtaJiNKQSwUVeD-LQ4rRDiRrVIJSr9SLa0buRx_h_JGCI0uIvRI3maZvy-_0pijSBMUbgvZbXiN7W1GL4geUHAKbc/s320/DSC_0004.JPG" /></a></div><br />
My husband and I often remark how complicated adult life is. Who can remember to fix the rear break light, return permission slips, pay the gardener, file taxes (or a 2010 extension), floss...?<br />
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After scheduling a sought after appointment for Henry months ago, guess which over-extended family forgot to show up? After considering tattooing upcoming appointments on my wrist, I did what one does when one needs to be fooled into the idea that one is in control. I developed a Dewey Decimal system of Henry's medical records in an accordion file.<br />
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But thankfully, today is Mother's Day. A day when crayons and crepe paper are all that's needed to make a woman believe she is loved. So simplicity is de rigueur.<br />
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The best gift I got came yesterday. It was the first time I've ever heard Henry put two words together. He ran into my room and came close to my face while I was sleeping.<br />
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"Hi Mom"<br />
<br />
Simply beautiful.Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-8335390093893202082.post-67059173900625606492010-04-13T20:46:00.000-07:002010-04-13T20:46:53.935-07:00We're fine<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhRD7gKqcQ8uhxPLsT1WGe1dkvfclWddor2jYkC9w_GblUegEjTh9firm6KwdQJhuCD9ugfbkI_quuXXhrmwdIBs70UGkw8Ccmuk-T9g7HVpwjnj0v8xpu-UGxG8Ot3aMyCFVYSIGOL9Y/s1600/DSC_0003.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhRD7gKqcQ8uhxPLsT1WGe1dkvfclWddor2jYkC9w_GblUegEjTh9firm6KwdQJhuCD9ugfbkI_quuXXhrmwdIBs70UGkw8Ccmuk-T9g7HVpwjnj0v8xpu-UGxG8Ot3aMyCFVYSIGOL9Y/s320/DSC_0003.JPG" /></a></div><br />
A lot of people have been wondering how we're doing. Was it the desperate depressing last posts that had you concerned? Don't worry, we're fine.<br />
<br />
We've been back home about five days now and Henry is having a little transition trouble. Who knows if it's leaving the routine and the hotel room we called home, or not being with me during the day anymore, or detoxing from daily intensive therapy.<br />
<br />
But we're doing baths every night, and thanks to the amazing sister (see above photo entitled "Snuggle") who's happy to join in, Henry's sitting in the tub, splashing around, and begging to stay in and play.<br />
<br />
This is huge.<br />
<br />
In other news, we've ordered a special toddler vitamin rich weight gainer and two <a href="http://www.albeebaby.com/stokke-trend-tripp-trapp-high-chair-in-green.html">Dr. Scholls meets IKEA chairs</a> for the kids. We went to a somewhat overwhelming geneticist appointment yesterday at the renowned <a href="http://www.ucdmc.ucdavis.edu/mindinstitute/">UC Davis MIND Institute</a> which happens to be here in town. It was just a consult, but opened up the unattractive possibility of Henry having an MRI. More on that in the future, I'm sure.<br />
<br />
Other than that, things are pretty much the same. But also totally different. I know the last few weeks have changed us all for the better. But we're still just a few more steps ahead of where we were.<br />
<br />
And things aren't really fine. But we're fine.Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-14999158164618778852010-04-08T21:54:00.000-07:002010-04-08T21:54:00.262-07:00Time to go home<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNtsUZtFwY9VWuLJPVZ3w0e_DNI9ZhnwkC5vcyQYnoFNPwmk402o8Uq6Y_0gyUrYxMid_eYy2mbI95MGqfGgvYzBxw1Hw5xLzIRX-_zPEIkTmX5U5iUyehy5GRxJdUyhTOx1ptDlRMo4/s1600/DSC_0006.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNtsUZtFwY9VWuLJPVZ3w0e_DNI9ZhnwkC5vcyQYnoFNPwmk402o8Uq6Y_0gyUrYxMid_eYy2mbI95MGqfGgvYzBxw1Hw5xLzIRX-_zPEIkTmX5U5iUyehy5GRxJdUyhTOx1ptDlRMo4/s320/DSC_0006.JPG" /></a></div><br />
We're headed home tomorrow. I'm definitely ready to wake up in my own bed, have over two dozen pairs of shoes to choose from, and have our little family back together.<br />
<br />
The other night, Henry woke up screaming so I let him sleep in my bed. He was really jumpy in his sleep, moving around all jerky like a goldfish left on the kitchen counter. I started to wonder if he always sleeps like this. Like his unconscious is either in a ball pit or a bar brawl.<br />
<br />
I mentioned this to his therapist who immediately thought that some elements of his therapy were becoming a lot for his little brain to handle. Some kids sleep restlessly after this crazy interesting <a href="http://www.associatedcontent.com/article/742541/tomatis_listening_therapy_hope_for.html">listening therapy</a> designed to eventually retrain the brain's processing. The last couple weeks, little man wore headphones attached to a mini-backpack that played Mozart or Gregorian chants during the climbing, jumping, and swinging of occupational therapy.<br />
<br />
So, we decided to take a couple days off the listening therapy to let his brain rest. In fact, this next month at home is intended to let all this intensive work settle in. This is a hallmark of the therapy methodology developed by <a href="http://www.starcenter.us/about-lucy.html">Dr. Lucy J. Miller</a> and I'll tell you what, I'm thankful.<br />
<br />
This experience has been equally hopeful and heartbreaking. I love my little man and I love all of him. But I'm tired and it's time to go home.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-76501917616830622962010-04-07T18:35:00.000-07:002010-04-07T19:56:24.001-07:00I don't want to write this<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZJtZ_qqAv4NiFvDqHe79xLVjNVIVr9oSASa12qgRm90xBiyliTnPDNLU_WZE6WW2TvYpvoE3QBPKXdphyVQEUk2wJYYF7ifiwy0fHd2qzTKSNWOiFM4GkChouKDclRtWAUafa7_qSjpE/s1600/DSC_0022.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZJtZ_qqAv4NiFvDqHe79xLVjNVIVr9oSASa12qgRm90xBiyliTnPDNLU_WZE6WW2TvYpvoE3QBPKXdphyVQEUk2wJYYF7ifiwy0fHd2qzTKSNWOiFM4GkChouKDclRtWAUafa7_qSjpE/s320/DSC_0022.JPG" /></a></div><br />
I don't want to write this. I'm really mad. And I don't want to sound negative. But I'm pissed off. And I'll warn you that there is no hopeful wrap-up at the end of this post.<br />
<br />
We met with an amazing <a href="http://www.starcenter.us/services-sos.html">feeding specialist</a> at STAR yesterday who is world renowned for her work with kids and their eating issues. She and a team comprised of a pediatrician, an occupational therapist, and a speech therapist watched Henry and me share a meal of soy yogurt, crackers and soy cheese behind a one-way mirror. After that, she came in to watch him up close and then they weighed his tiny little body and wrote up their report.<br />
<br />
I'm mad that the news about how my boy eats, is not good news.<br />
<br />
The team is incredible and the way Dr. Toomey explained his difficulties to us was just short of messianic. She spent three hours telling me exactly what is going on in his little mouth and why he stuffs it full of food, melts down at meal times, and chokes.<br />
<br />
But I'm mad that his tongue doesn't work right. That he can't chew. That he has the feeding skills of a 6-9 month old. That he's anemic. That he seems to be allergic to a bunch of things. And it makes me cry. And it's frustrating. And I hate it.<br />
<br />
And I don't want to know that his road is even harder than I knew. And I didn't want to write this. But it's all part of it.Unknownnoreply@blogger.com6tag:blogger.com,1999:blog-8335390093893202082.post-86523336167207160342010-04-04T17:56:00.000-07:002010-04-04T18:05:34.559-07:00Bathtime triptych<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdnjupzHq3KSaq-fzcx7bCDRaQHhGCYysVZK89EW5Kz27l1sbu598UcaitzyuWWnx-dUOlhyt4fCA6_mn23EarPUHRaOYtw-E9tKz3HPNs6MwBYFQuDgSSQzZeVjsjBjU0tcrbh5p7gHc/s1600/DSC_0009.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdnjupzHq3KSaq-fzcx7bCDRaQHhGCYysVZK89EW5Kz27l1sbu598UcaitzyuWWnx-dUOlhyt4fCA6_mn23EarPUHRaOYtw-E9tKz3HPNs6MwBYFQuDgSSQzZeVjsjBjU0tcrbh5p7gHc/s320/DSC_0009.JPG" /></a></div><br />
*this is me, henry, offended and skeptical at the mere mention of the thought of the possibility of a bath*<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbGPsb4naxm1RlcMrrorQmehDrp7QpK2iUloTrVJtNi6CNX7Ot7Gum33yXZ7HmJpmtU-F63CF6-06cKYTw0qREef_0ZiWhEcMioeCydrw_vMBFVFwWLL-R6SSldi5Gw1rhYhzP2jVoH10/s1600/DSC_0004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbGPsb4naxm1RlcMrrorQmehDrp7QpK2iUloTrVJtNi6CNX7Ot7Gum33yXZ7HmJpmtU-F63CF6-06cKYTw0qREef_0ZiWhEcMioeCydrw_vMBFVFwWLL-R6SSldi5Gw1rhYhzP2jVoH10/s320/DSC_0004.JPG" /></a></div><br />
*here i am, the next day, happy to be playing <b>near</b> the bath. i must point out, however, that i am clothed. happily clothed.*<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYML6I7Itzlrp4UirGB_V0DwnNS5hVFFFCPuIV0X2oU5EEX4-DioknYzAa1T8EOq9gNDgAw8M0UQRvowLxW54oGCYFf-8SFrRtyWEEtnXBFfWlloZJ7eWMp3Wl9WyzkUdSF4gofdZf3S4/s1600/DSC_0016.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYML6I7Itzlrp4UirGB_V0DwnNS5hVFFFCPuIV0X2oU5EEX4-DioknYzAa1T8EOq9gNDgAw8M0UQRvowLxW54oGCYFf-8SFrRtyWEEtnXBFfWlloZJ7eWMp3Wl9WyzkUdSF4gofdZf3S4/s320/DSC_0016.JPG" /></a></div><br />
*this morning, i promised to relinquish my birthright as first born son if my mom would let me play in the tub.*<br />
<br />
*i still haven't sat down in the water. don't push your luck*<br />
<br />
respectfully yours,<br />
hpkUnknownnoreply@blogger.com2tag:blogger.com,1999:blog-8335390093893202082.post-73262239076327983292010-04-02T14:44:00.000-07:002010-04-08T18:32:28.183-07:00Shoes. Meh.<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiadIS60_hfHuiql0ITOODM6g0UeeqvR8Kx1dwcb9tHRtJT0WzUXi_hO9c_S__4ZdwKPyWgN96XSqKOHPj08pFcdQ8fbGMooF4ARkeqDJDWJ1BUG9-tjfZFYUfQUDlBrtJJcYqadLntAsE/s1600/DSC_0016.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiadIS60_hfHuiql0ITOODM6g0UeeqvR8Kx1dwcb9tHRtJT0WzUXi_hO9c_S__4ZdwKPyWgN96XSqKOHPj08pFcdQ8fbGMooF4ARkeqDJDWJ1BUG9-tjfZFYUfQUDlBrtJJcYqadLntAsE/s320/DSC_0016.JPG" /></a></div><br />
I love shoes.<br />
<br />
Henry does not share my passion. In fact, I have bought too many pairs of shoes for him that have gone unworn due to his refusal (imagine little man's adorable furrowed brow and shaking head).<br />
<br />
Two pairs have thus far met with his approval; Pedi ped <a href="http://www.pediped.com/Product/ProductInfo.aspx?id=157">sandals</a> worn to bits of leather clinging together by frayed threads and Converse <a href="http://shop.nordstrom.com/S/3037312/0~2376780~6009391~6015982~6015988?mediumthumbnail=Y&origin=category&searchtype=&pbo=6015988&P=2">sneakers</a> with velcro and an eventual scent that warranted their destruction.<br />
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But now, drumroll...we have found a third pair. I think these cute Merrell <a href="http://www.rei.com/product/788583">trail runners</a> appropriately capture the Wilderness Boy image with some hipster orange thrown in. Of course, I'm sure that's not why Henry likes them. Like a lot of things we've discovered through trial and error, they just <b>work</b>. Phew.<br />
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A lot of SPD kids have trouble with socks and shoes and clothing. The seams on socks and tags on shirts are particularly bothersome for some kids to the point that they can't concentrate on anything else. Going without socks is a favorite of Henry's, which I'm guessing is part of the Converse olfactory unpleasantness.<br />
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<span class="Apple-style-span" style="font-family: Verdana, Geneva, sans-serif; font-weight: bold; line-height: 15px;"><a href="http://www.blogger.com/goog_1864851742">Soft</a><span style="border-bottom-width: 0px; border-color: initial; border-left-width: 0px; border-right-width: 0px; border-style: initial; border-top-width: 0px; font-family: inherit; font-style: normal; font-weight: normal; list-style-image: initial; list-style-position: initial; list-style-type: none; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; outline-color: initial; outline-style: none; outline-width: initial; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; position: relative; text-decoration: none; vertical-align: top;"><a href="http://www.softclothing.net/">®</a></span></span> is a fabulous new line created by Jessica E. Ralli, a mom and special education professional in New York City. The designs are superb, with no tags, covered seams and as the name implies, they look miraculously soft.<br />
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The website says seamless socks coming April 2010. We'll be waiting with bated breath. And held nose.Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-8335390093893202082.post-53546371481025398772010-03-31T23:18:00.000-07:002010-03-31T23:23:28.579-07:00Arousal at a museum<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUkd_zV1V4CS8umFS6blvFf8Rh-dbgphLPSJZBFkGDGeloscXQpbC_QB5Y7zqirsDmCgYjfFwX2Igz7ocXzNrczCIR5IX-nOQ7DTHQwU_5aWpQMJOhpRKSo31UA16AvZVkZP3KHB0xzOQ/s1600/DSC_0001.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUkd_zV1V4CS8umFS6blvFf8Rh-dbgphLPSJZBFkGDGeloscXQpbC_QB5Y7zqirsDmCgYjfFwX2Igz7ocXzNrczCIR5IX-nOQ7DTHQwU_5aWpQMJOhpRKSo31UA16AvZVkZP3KHB0xzOQ/s320/DSC_0001.JPG" /></a></div><br />
Sorry about the title. I couldn't help myself. Also, sorry if your Google search brought you here with completely different expectations.<br />
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However, occupational therapists speak quite a bit about arousal. And in the case of SPD kids it's 1. not always good, 2. not always easy to spot, and 3. not easy to come down from. Let me explain.<br />
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Henry has had a rough couple of days filled with moments of meltdowns. One reason, suggested by his dear therapist, is that his arousal level gets too high and he isn't recovering well. This means he can look like a completely normal 2 year old at a children's museum until later that night at 8-11 pm when he can't stop screaming.<br />
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So, as it turns out, the sudden spikes of emotion are actually slowly brewing caused by various visual and auditory stimuli. When he's running around wild and working himself up into a tizzy that I think is "getting all his energy out," he's actually going to an elevated <a href="http://www.youtube.com/watch?v=GJIofU-0jC0">whirling dervish</a> state that specifically doesn't help him.<br />
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A great thing about the STAR Center is the <a href="http://www.starcenter.us/professional.html">parent education hours</a> where the therapist sits down and answers questions and discusses observations surrounding treatment. It's kind of a pain to figure out what to do with your child during this time since you have to be there without them. But I find that's pretty much always the case when taking opportunities to learn, be refreshed, and become a better parent.<br />
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Meanwhile, I just hope my son isn't getting too aroused. Gees, isn't it a little early to worry about that?<br />
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Sorry again. Couldn't help myself.<br />
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And sorry Henry, for this post being totally and completely embarrassing to you in 12 years.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-27726537279221663392010-03-30T19:56:00.000-07:002010-04-08T18:33:56.006-07:00A boy and his doll<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoKtndXLnFUSSpPDaVMWZgGQaDpWMfygYSkzLhO8Bmyso2ILEniVRhqpKznV40eDSzKM4oBic-xqrAWVN12jM4n7tq13R0a9fKwlPIvAkqUnT59N5hDeQShPGunv2L8tpuI30auJR3nik/s1600/DSC_0009.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoKtndXLnFUSSpPDaVMWZgGQaDpWMfygYSkzLhO8Bmyso2ILEniVRhqpKznV40eDSzKM4oBic-xqrAWVN12jM4n7tq13R0a9fKwlPIvAkqUnT59N5hDeQShPGunv2L8tpuI30auJR3nik/s320/DSC_0009.JPG" /></a></div><br />
<div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">Today, I understood that life can be scary when you're a little guy like Henry. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">Henry has good taste. He likes the feel of cashmere, the music of Johnny Cash, the taste of Chick-fil-A. I spent too long to admit finding a drive thru chicken house to get the fried nugget goodness for the two of us today. Henry loved it. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">He loved it so much that he crammed way too much into his mouth without chewing and began to choke. Really choke. Like, life-flashing-before-my-eyes-adrenaline-rush-save-your-baby-choke. After a finger swipe (thank you 10th grade CPR) and a slap on the back, he was really scared and so was I and soon after he was quite obviously over the chicken. When kids are in a fight or flight mode of self protection (which happens with sensory over responsiveness), they lose their appetite. Another meal missed. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">Earlier in the day, Henry's therapist suggested we get him a doll to bathe so he might feel more comfortable with the tub. After determining that the Bathtime Baby Doll with pink accessories was less feminine than the purple My Little Pony Bathtime Baby, we came home from Target with a very excited little man. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">He carried, fed, bathed, changed, read to, and put to bed that baby doll about 38 times in three hours. "Caring for" his baby puts him in control and makes him seem so much less...scared. needy. worried. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">Right now, I can't figure out how to make him less scared when he chokes, or can't feel gravity like the rest of us, or sees other kids moving toward him too fast. </span></div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;"><br />
</span> </div><div style="text-align: left;"><span class="Apple-style-span" style="font-family: inherit;">But I can give a boy a doll. </span><br />
<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif;"><br />
</span></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-8335390093893202082.post-63338938615550335142010-03-29T19:35:00.000-07:002010-03-29T19:36:23.637-07:00Bowl of spaghetti and a bath, Part II<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgk9GwS7Wwn-oraeNn1F6qG13oXKBYizxRTKfg9LENB0PR0gdPRCUwdsyKbq5HaaKR6uQwrdIw_Qir6XipfoX7FJ9T6v_oXRj2lYfm5fQO7H48GFzMf6Dl6mx6qflEDXMbeA1dW2jTO3N4/s1600/DSC_0020.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgk9GwS7Wwn-oraeNn1F6qG13oXKBYizxRTKfg9LENB0PR0gdPRCUwdsyKbq5HaaKR6uQwrdIw_Qir6XipfoX7FJ9T6v_oXRj2lYfm5fQO7H48GFzMf6Dl6mx6qflEDXMbeA1dW2jTO3N4/s320/DSC_0020.JPG" /></a></div><br />
Part II of why tonight was amazing. Bath time.<br />
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Last week, we told Henry's sweet therapist about his difficulty with bath times. She asked the obvious question. How often does Henry get a bath?<br />
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Weeeeeeell, I'd say it's about once a month. Yep. For a little boy. Who never stops moving. The poor little guy is absolutely terrified of the tub and apparently tortured by the feeling of water poured on him.<br />
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I used a couple techniques I'd seen the therapists use, like having a toy go through a track of foamy soap, having the train jump in the water, and taking turns with other toys until he was ready to get in. And yes, <a href="http://en.wikipedia.org/wiki/Oedipus_complex">Oedipus</a>, I did have to get in. It was a long process, but he got clean with no screaming.<br />
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Then it was new Thomas pj's, an Elmo book, and out like a light. Hallelujah.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-8335390093893202082.post-89670565486847335922010-03-29T19:06:00.000-07:002010-03-30T21:34:03.808-07:00Bowl of spaghetti and a bath, Part I<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd42EqYx1BM64PyHiWlMuqwvcR64GiMxyl5ogAClFieUmoyjKPeAME4Pc9pejSOjpYc4ms4hAe3E3gmTdY4niBwf58VP3NZCwpyQZB0DDANjSw0lA8AEWLk8hLUUfcOBkfkgGwCWXNg6s/s1600/DSC_0005.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd42EqYx1BM64PyHiWlMuqwvcR64GiMxyl5ogAClFieUmoyjKPeAME4Pc9pejSOjpYc4ms4hAe3E3gmTdY4niBwf58VP3NZCwpyQZB0DDANjSw0lA8AEWLk8hLUUfcOBkfkgGwCWXNg6s/s320/DSC_0005.JPG" /></a></div><br />
Tonight, Henry had a nice bowl of spaghetti and a bath.<br />
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In case you didn't catch that, I'll repeat it. <b>Henry had a nice bowl of spaghetti and a bath</b>. This is a normal night for most toddlers. This is slightly short of a miracle for us.<br />
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Let's start with food. Mealtimes at our house are typically stressful events that upset everyone and where no one actually eats. This is heartbreak for a family of foodies whose most enjoyable times in life involve food, laughter, and a huge country pine dining table with wine stains on it.<br />
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I read the books, people. I know you're supposed to sit together, encourage new tastes and textures, and let the kid get messy while he's learning. Except none of those things are easy for SPD kids. 1. Sitting-nope. 2. New tastes and textures-Ha. 3. Get messy-meltdown.<br />
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When all you want is your kid to gain weight, you'll throw a lot of your philosophies out the window pretty quick. But I'm trying. I bought a cute little tray for him at Pottery Barn Kids and am developing routines and convincing him to sit for meals. There are other related issues with SPD like difficulty chewing, digestion problems, and (some folks say) food allergies. We're meeting with a <a href="http://www.starcenter.us/about-sos.html">rock star feeding specialist</a> at the STAR Center while we're here to help us figure out how to put some meat on those bones. Stay tuned.<br />
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But for today-Give thanks for spaghetti.Unknownnoreply@blogger.com0